March 13, 2026

A Detailed Guide to Personal Planning for Those Living with Dementia and Their Families (British Columbia)

Planning ahead allows the person diagnosed to remain at the centre of decisions about their life while they still have the ability to clearly communicate their wishes. It also reduces confusion, conflict, and stress for family members later on.

A diagnosis of dementia can feel overwhelming. Along with processing emotions, families are suddenly faced with practical questions about health care, finances, housing, and future decision-making. Because dementia is a progressive condition, planning early is one of the most important steps a person and their loved ones can take.

Planning ahead allows the person diagnosed to remain at the centre of decisions about their life while they still have the ability to clearly communicate their wishes. It also reduces confusion, conflict, and stress for family members later on.

The Three Essential Steps After Diagnosis

Once a diagnosis is received, there are three key actions that should happen as soon as possible:

1. Reflect on Personal Wishes and Values

Think about what matters most:

  • Where do you want to live as the disease progresses?
  • What are your beliefs about medical treatment and quality of life?
  • Who do you trust to make decisions for you?
  • What do comfort, dignity, and independence mean to you?

These conversations may feel difficult, but they are incredibly meaningful.

2. Talk Openly with Family and Trusted Friends

Share your wishes clearly. Written documents are important, but open conversations are equally valuable. Families who have discussed preferences in advance often experience less guilt and uncertainty when making difficult decisions later.

3. Put Legal Plans in Place Early

Legal planning ensures your chosen decision-makers have the authority they need when the time comes. Waiting too long may mean the person diagnosed no longer has the legal capacity required to complete certain documents.

Having clearly written instructions is a gift to your loved ones. It gives them confidence that they are carrying out your direct wishes.

Personal Planning vs. Estate Planning

It is important to understand the difference:

  • Personal planning takes effect while a person is still alive but no longer able to make certain decisions independently.
  • Estate planning (such as a will) takes effect after death.

Both are important, but they serve different purposes.

Planning for the Future (While Capacity Is Intact)

These documents must be created while the person diagnosed still understands the nature and consequences of their decisions.

Enduring Power of Attorney (EPA)

An Enduring Power of Attorney must be prepared by a lawyer or notary public in British Columbia.

This document allows the person diagnosed to appoint someone they trust (called an attorney) to manage:

  • Financial affairs
  • Legal matters
  • Property decisions

The “enduring” aspect means it remains valid even after the person becomes mentally incapable.

Why This Is So Important

In British Columbia, jointly owned assets (such as a home or vehicle) normally require signatures from both parties. If one person loses legal capacity and no EPA is in place, major financial decisions can become complicated or impossible without court involvement.

An EPA allows the appointed person to:

  • Pay bills
  • Manage investments
  • Handle banking
  • File taxes
  • Sign legal documents
  • Sell or manage property if necessary

Without an EPA, families may need to apply for committeeship through the courts, which is more costly, stressful, and time-consuming.

A lawyer or notary public will also assess whether the person has the legal competency required to create the document.

Representation Agreement Section 9 (RA9)

A Representation Agreement Section 9 (RA9) allows a person to appoint a trusted representative to make:

  • Health care decisions
  • Personal care decisions

Although a lawyer or notary is not legally required in BC, professional guidance is strongly recommended to ensure the document is properly completed.

The RA9 can include decisions about:

  • Life-support treatments
  • Major medical procedures
  • Long-term care placement
  • End-of-life care

The person signing must understand the nature and consequences of granting this authority.

This document gives families clarity and ensures health care providers know exactly who has legal authority to speak on the person’s behalf.

Planning for Today (When Capacity Is Reduced or Questioned)

As dementia progresses, legal capacity may become diminished. At this stage, other planning tools may apply.

Representation Agreement Section 7 (RA7)

A Representation Agreement Section 7 (RA7) is designed for individuals whose mental capacity may already be in question.

While a lawyer is not required, it is still recommended to ensure accuracy.

The RA7 allows a trusted representative to act in four specific areas:

1. Major and Minor Health Care

  • Medications
  • Medical tests
  • Dental care
  • Surgeries
  • Ongoing treatments

2. Personal Care

  • Living arrangements
  • Diet and nutrition
  • Daily supports
  • Therapies

3. Legal Affairs (Limited)

The representative may:

  • Obtain basic legal services
  • Settle insurance claims

However, unlike an RA9, they cannot make major financial decisions such as selling a home.

4. Routine Management of Financial Affairs

This includes:

  • Banking
  • Managing government benefits
  • Filing income taxes
  • Redirecting mail
  • Handling day-to-day expenses

The representative cannot:

  • Sell major assets
  • Take out loans
  • Obtain credit on behalf of the person

The RA7 helps families manage daily matters while protecting the individual from significant financial changes without stronger legal authority.

When No Planning Has Been Done

If no legal documents are in place, families may face more complex legal processes.

Committeeship

Committeeship is a court order granted by a judge when a person has lost full capacity to manage personal and financial affairs.

This process:

  • Requires medical evidence
  • Involves legal proceedings
  • Can be costly and time-consuming
  • May create family conflict

This is why early planning is strongly encouraged.

Temporary Substitute Decision Maker (TSDM)

If a person is incapable of consenting to medical treatment and has no RA9 or other appointed decision-maker, a health care provider may appoint a Temporary Substitute Decision Maker (TSDM).

Requirements for a TSDM:

  • Must be at least 19 years old
  • Must have been in contact with the person within the past 12 months
  • Must have no dispute with the person
  • Must be capable of providing informed consent
  • Must be willing and available

Order of Selection:

  1. Spouse or partner (including marriage-like relationships)
  2. Adult child
  3. Parent
  4. Sibling
  5. Grandparent
  6. Grandchild
  7. Other relative
  8. Close friend
  9. Relative by marriage

If no suitable person is available, the Public Guardian and Trustee (PGT) may be appointed.

Important Limitations

A TSDM:

  • Can only make health care decisions
  • Cannot make financial decisions
  • Cannot handle emergency financial matters

They must consult the person diagnosed as much as possible and base decisions on previously expressed wishes.

The Emotional Side of Planning

Personal planning is not just legal, it is emotional.

Families often struggle with:

  • Fear of making the “wrong” decision
  • Guilt over care transitions
  • Sibling disagreements
  • Stress about finances

Early planning:

  • Reduces family conflict
  • Clarifies responsibilities
  • Protects relationships
  • Brings peace of mind

When wishes are written down, families are guided by the voice of their loved one, not by uncertainty.

Why Early Action Matters

Dementia affects memory, reasoning, and judgment over time. Waiting too long can mean:

  • The person can no longer legally sign documents
  • Court intervention becomes necessary
  • Health care providers must follow default legal hierarchies
  • Family disagreements escalate

Planning early ensures the person diagnosed remains empowered for as long as possible.

Where to Access Forms and Information in British Columbia

For detailed guidance, free Representation Agreement forms, and estate planning resources, visit:

Nidus Personal Planning Resource Centre & Registry
Website: www.nidus.ca

Nidus provides education, forms, and tools specifically designed for personal planning in British Columbia.

Final Thoughts

Although these conversations can feel uncomfortable, personal planning is one of the most compassionate and practical steps families can take after a dementia diagnosis.

It preserves dignity.
It reduces crisis decisions.
It protects finances.
It ensures wishes are honoured.

Most importantly, it keeps the person living with dementia at the heart of every decision, while they can still guide the path forward.

For more information, please refer to the blogs: “Understanding Alzheimer’s & Dementia” or “What is Dementia: The 6 Types, Causes, and Symptoms”.

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